This list of online, national, provincial and territorial resources was developed for National Hospice Palliative Care Week 2024.
Note: These resources include links to external websites. We do our best to make sure these links are accurate and up to date. However, CHPCA is not responsible for any of the content hosted on external websites or for their accuracy.
To suggest new resources to include, contact us at [email protected].
Find resources on:
Palliative Care & Caregiving Guides
CHPCA Palliative Care Info Sheets
A Caregiver’s Guide: A Handbook About End-of-life Care, Hospitallers of St. Lazarus of Jerusalem and Canadian Hospice Palliative Care Association
Caregiver Compass, SE Health
Carechannel, SE Foundation and Elizz
The Waiting Room Revolution podcast
Caregiving Guides and Tools, CREGÉS – Centre for Research and Expertise in Social Gerontology
Online Learning
Care Connections, Pallium Canada
Caregiving Essentials, McMaster University
Caregiver Support Education & First Nations Caregiver Support Education, Hospice Palliative Care Ontario
Understanding Palliative Care, Covenant Health Palliative Institute
Videos
What Happens As We Die?
Dr Kathryn Mannix, TedX Newcastle
Living With an Incurable Disease
Réseau québécois de recherche en soins palliatifs et de fin de vie (RQSPAL)
Advance Care Planning
- Living Well, Planning Well: An Advance Care Planning Resource for Accessing Your Rights
- Comfort Care at the End-of-Life for Persons with Alzheimer’s Disease or other Degenerative Diseases of the Brain, SPA LTC, Advance Care Planning Canada, Canadian Hospice Palliative Care Association
- Resource Guide for Home and Community Care Providers
Illness Trajectory Resources (Dementia, Heart Failure, Frailty, Advanced Lung Disease and Advanced Kidney Disease), SPA LTC
My Voice in Action: A Workbook For Advance Care Planning (Easy Read Version), Fraser Health (British Columbia)
Planning for My Care: For People who identify as Two-Spirit and LGBTQ+, Canadian Virtual Hospice
My Wishes, My Care, BC Centre for Palliative Care
My Wishes Alberta Workbook, Covenant Health Palliative Institute
For Indigenous Persons
Preparing for the Journey: Caring for Indigenous Peoples Who Are Seriously Ill, Centre for Education and Research on Aging & Health, Lakehead University
LivingMyCulture.ca, Canadian Virtual Hospice
First Nations Caregiver Support Education, Hospice Palliative Care Ontario
Coming Full Circle, First Nations Health Authority and Canadian Virtual Hospice
Your Care, Your Choices, First Nations Health Authority
Elder Wellness, First Nations Health Authority
National Caregiver Organizations or Programs
Provincial / Territorial Caregiver Support Organizations
L’Appui proches aidants [Quebec]
Compassionate Alberta, a project by the Covenant Health Palliative Institute
- Additional Community Support Tools [Alberta, and Canada-wide resources]
Other Helpful Organizations and Programs
Helpful Tip: Many disease-specific or disability focused organizations also provide support for caregivers who care for a person affected by that illness or disability.
Give a Mile – Provides flights for people at end-of-life to connect with their loved ones for a final goodbye.
Hope Air – Providing Canadians in financial need with free travel to access medical care far from home.
Chosen Family & Aging Gayfully, programs by the Fondation Émergence supporting LGBTQ+ seniors and family caregivers in Quebec and Canada.
Biblio-Santé Booklets [Quebec] – Quality health related information selected by Quebec public libraries, including:
Employment Insurance Caregiving Benefits and Leave – Canada.ca
To suggest new resources to include, contact us at [email protected].