Canadian Network Of Palliative Care For Children

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About The CNPCC

Our purpose is to improve the quality of living and dying for infants, children and youth with lifethreatening conditions and their families.

We provide leadership and a common voice for pediatric hospice palliative care across Canada, driving, empowering and supporting high quality care throughout the trajectory of the illness and through bereavement.

 Mission

Our purpose is to improve the quality of living and dying for infants, children and youth with life-threatening conditions and their families. We provide leadership and a common voice for pediatric hospice palliative care across Canada, driving, empowering and supporting high quality care throughout the trajectory of the illness and through bereavement.

Executive Committee

Terms of Reference  

Purpose

To provide leadership in pediatric hospice palliative care and to advocate for greater and more equal access for children of all ages, along with their families, to high quality palliative care programs, whatever their geographic location.

  • Advocate to increase awareness and resources
  • Advocate for the integration of hospice palliative and end-of-life care principles and practices into all health settings
  • Promote a common/cohesive understanding of pediatric hospice palliative care, emphasizing the importance of early access to palliative care, (combined with therapy for cure or control of condition), among professionals, community organizations and family caregivers.
  • Advocate for providers in all settings to have access to specialized pediatric palliative care teams
  • Collaborate on national and international activities and initiatives in the field of hospice palliative care and to seek opportunities for partnerships,
  • Support initiatives to improve the quality of palliative care provided to children with life threatening conditions
  • Advocate for, and support initiatives to increase palliative care education at undergraduate and post graduate levels for all relevant professions, as well as education and training for practicing clinicians in all health care settings including the community.
  • Promote evidence-informed policy and practices
  • Identify and refine best practices and standards for pediatric hospice palliative, palliative care and bereavement support in all settings.
  • Seek opportunities for research collaborations, and disseminate findings to the field.
  • To function as a Community of Practice to share knowledge and experience and provide support to improve the overall quality of the delivery of hospice palliative care for children and the well-being of network members.

Governance

CNPCC is a professional network within the Canadian Hospice Palliative Care Association (CHPCA).

CNPCC has an Executive Committee to oversee day-to-day operations, manage budget, propose, plan and implement policy and initiatives, and communicate on behalf of the CNPCC. Terms of Reference for the Executive Committee are available on the CNPCC website.

Membership

Clinicians, researchers, educators and administrators with a role primarily related to pediatric hospice and palliative care (including grief support) can be full members of the CNPCC. The CNPCC also welcomes volunteers, health care professionals, family members, and members not resident in Canada with an interest in PHPC as associate members. 

Announcements

CNPCC Response to CIHI Report on Access to Palliative Care in Canada

On April 23, 2023 the Canadian Institute for Health Information released their Access to Palliative Care in Canada report, looking at what has changed since 2018 in the state of palliative care in Canada, to understand what patients and caregivers are experiencing, and what gaps in access still remain.

Read the CNPCC’s full response here.

PPC Nursing Competencies

To facilitate nationally consistent education and ongoing development of nurses entering the growing field of pediatric palliative care (PPC), a core group of nurses from specialized PPC programs in Canada came together to develop PPC Nursing Competencies. The hope is that by delineating and using these competencies to guide nursing education and practice across the country, the quality and consistency of PPC delivery will be enhanced.

Click here for the competencies

The Canadian Hospice Palliative Care Association (CHPCA) and the Canadian Network for Palliative Care for Children (CNPCC) proudly marked October 13th as the first National Children’s Hospice Palliative Care Day in Canada.

We held a webinar on the 13th titled “Children’s hospice palliative care: it takes a village”. Watch it below:

Children’s hospice palliative care: it takes a village from CHPCA on Vimeo

Information & Resources

Contact

For questions and inquiries about the Canadian Network of Palliative Care for Children, please click here or email [email protected]