About The CNPCC
Our purpose is to improve the quality of living and dying for infants, children and youth with lifethreatening conditions and their families.
We provide leadership and a common voice for pediatric hospice palliative care across Canada, driving, empowering and supporting high quality care throughout the trajectory of the illness and through bereavement.
Our purpose is to improve the quality of living and dying for infants, children and youth with life-threatening conditions and their families. We provide leadership and a common voice for pediatric hospice palliative care across Canada, driving, empowering and supporting high quality care throughout the trajectory of the illness and through bereavement.
Terms of Reference
To provide leadership in pediatric hospice palliative care and to advocate for greater and more equal access for children of all ages, along with their families, to high quality palliative care programs, whatever their geographic location.
- Advocate to increase awareness and resources
- Advocate for the integration of hospice palliative and end-of-life care principles and practices into all health settings
- Promote a common/cohesive understanding of pediatric hospice palliative care, emphasizing the importance of early access to palliative care, (combined with therapy for cure or control of condition), among professionals, community organizations and family caregivers.
- Advocate for providers in all settings to have access to specialized pediatric palliative care teams
- Collaborate on national and international activities and initiatives in the field of hospice palliative care and to seek opportunities for partnerships,
- Support initiatives to improve the quality of palliative care provided to children with life threatening conditions
- Advocate for, and support initiatives to increase palliative care education at undergraduate and post graduate levels for all relevant professions, as well as education and training for practicing clinicians in all health care settings including the community.
- Promote evidence-informed policy and practices
- Identify and refine best practices and standards for pediatric hospice palliative, palliative care and bereavement support in all settings.
- Seek opportunities for research collaborations, and disseminate findings to the field.
- To function as a Community of Practice to share knowledge and experience and provide support to improve the overall quality of the delivery of hospice palliative care for children and the well-being of network members.
CNPCC is a professional network within the Canadian Hospice Palliative Care Association (CHPCA).
CNPCC has an Executive Committee to oversee day-to-day operations, manage budget, propose, plan and implement policy and initiatives, and communicate on behalf of the CNPCC. Terms of Reference for the Executive Committee are available on the CNPCC website.
Clinicians, researchers, educators and administrators with a role primarily related to pediatric hospice and palliative care (including grief support) can be full members of the CNPCC. The CNPCC also welcomes volunteers, health care professionals, family members, and members not resident in Canada with an interest in PHPC as associate members.
- Full members have voting rights to vote at General Meetings as will be called, at least bi-annually, and can vote on other CNPCC-wide initiatives from time-to-time.
- Full members can serve on committees as formed by the Executive Committee.
- Full members can access funds available for projects, bursaries, travel, etc., as made available through the CNPCC as appropriate and determined by the Executive Committee
- Full members will receive discounts, as appropriate and determined by the Executive Committee for CNPCC activities that have associated costs.
- Full members can designate themselves as “Member, CNPCC”.
- Full members can access all CNPCC materials
- Application for full membership will be made by applying to the CNPCC through the Executive Committee. The Executive committee will establish processes for reviewing applications and approving applicants.
- Full members of the CNPCC must be members in good standing of either CHPCA or their provincial hospice palliative care association.
- Associate members will receive communications from the CNPCC via avenues such as mailing lists, and will receive updates, newsletters, etc.
- Associate members can attend the General Meeting of the CNPCC.
- Associate Members may be eligible for discounts, as appropriate and determined by the Executive Committee for CNPCC activities that have associated costs.
- Application for associate membership will be made by applying to the CNPCC through the Executive Committee. The Executive committee will establish processes for reviewing applications and approving applicants.
- Associate members do not have voting rights.
- Associate members do not serve on committees unless the Terms of Reference for a committee specifies their participation
- Associate members cannot access the Members website or other Members-only materials or documents.
- Associate members do not have to be members of CHPCA or their provincial hospice palliative care association
To facilitate nationally consistent education and ongoing development of nurses entering the growing field of pediatric palliative care (PPC), a core group of nurses from specialized PPC programs in Canada came together to develop PPC Nursing Competencies. The hope is that by delineating and using these competencies to guide nursing education and practice across the country, the quality and consistency of PPC delivery will be enhanced.
The Canadian Hospice Palliative Care Association (CHPCA) and the Canadian Network for Palliative Care for Children (CNPCC) proudly marked October 13th as the first National Children’s Hospice Palliative Care Day in Canada.
We held a webinar on the 13th titled “Children’s hospice palliative care: it takes a village”. Watch it below:
Children’s hospice palliative care: it takes a village from CHPCA on Vimeo
Information & Resources
BC Children’s Hospital – Vancouver, BC
Alberta Children’s Hospital – Calgary, AB
Stollery Children’s Hospital – Edmonton, AB
Royal University Hospital – Saskatoon, SK
Winnipeg Health Sciences Centre – Winnipeg, MB
Trillium Health Partners – Mississauga, ON
Gurjit Sangha RN BSc MN CHPCN(C)
Paediatric Palliative Care Facilitator – Women’s & Children’s Program
P: (905) 813-1100 ext. 6573
McMaster Children’s Hospital – Hamilton, ON
Children’s Hospital, London Health Sciences Centre – London, ON
Children’s Hospital of Eastern Ontario – Ottawa, ON
Montreal Children’s Hospital – Montreal, QC
Sainte Justine Hospital – Montreal, QC
1.0 Symptom management
Pediatric Palliative Care Approach to Pain and Symptom Management (Dana Farber Cancer Institute – Boston Children’s Hospital Pediatric Advanced Care Team)
Basic Symptom Control in Paediatric Palliative Care (Together for Short Lives)
Care Pathways (Together for Short Lives)
2.0 Standards of Care
Pediatric Hospice Palliative Care Guiding Principles and Norms of Practice (Canadian Hospice Palliative Care Association)
Standards of Practice for Pediatric Palliative Care (National Hospice and Palliative Care Organization)
End of life care for infants, children and young people with life-limiting conditions: planning and management (NICE Guideline)
Standards Framework (Together for Short Lives)
Guide to Children’s Palliative Care (Together for Short Lives)
Core Care pathway (Together for Short Lives)
3.0 Ongoing Quality Improvement and Program Development
Education in Palliative and End of Life Care (EPEC) Peds
Learning Essential Approaches to Palliative Care (LEAP) Peds
Interprofessional educational opportunities
- US pedpal listserv
- British Paed-pal listserv
- Pain Listserv
For questions and inquiries about the Canadian Network of Palliative Care for Children, please click here or email [email protected]