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Terms of Reference

Purpose

To provide leadership in pediatric hospice palliative care and to advocate for greater and more equal access for children of all ages, along with their families, to high quality palliative care programs, whatever their geographic location.

  • Advocate to increase awareness and resources
  • Advocate for the integration of hospice palliative and end-of-life care principles and practices into all health settings
  • Promote a common/cohesive understanding of pediatric hospice palliative care, emphasizing the importance of early access to palliative care, (combined with therapy for cure or control of condition), among professionals, community organizations and family caregivers.
  • Advocate for providers in all settings to have access to specialized pediatric palliative care teams
  • Collaborate on national and international activities and initiatives in the field of hospice palliative care and to seek opportunities for partnerships,
  • Support initiatives to improve the quality of palliative care provided to children with life threatening conditions
  • Advocate for, and support initiatives to increase palliative care education at undergraduate and post graduate levels for all relevant professions, as well as education and training for practicing clinicians in all health care settings including the community.
  • Promote evidence-informed policy and practices
  • Identify and refine best practices and standards for pediatric hospice palliative, palliative care and bereavement support in all settings.
  • Seek opportunities for research collaborations, and disseminate findings to the field.
  • To function as a Community of Practice to share knowledge and experience and provide support to improve the overall quality of the delivery of hospice palliative care for children and the well-being of network members.

Governance

CNPCC is a professional network within the Canadian Hospice Palliative Care Association (CHPCA).

CNPCC has an Executive Committee to oversee day-to-day operations, manage budget, propose, plan and implement policy and initiatives, and communicate on behalf of the CNPCC. Terms of Reference for the Executive Committee are available on the CNPCC website.
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