2021 Conference Program

The preliminary program is based on currently accepted abstracts.  The program is subject to change and final program listings will be updated online.  Please check back often.

Plenaries

Nouman Ashraf

Nouman Ashraf is an Assistant Professor, Teaching Stream within the Organizational Behavior area at the Rotman School of Management.

He possesses a broad range of professional, academic and research interests, with a specialized focus on enabling inclusive and innovative practices within teams, organizations and boards. For the last decade and a half, he has held progressively senior roles at the University of Toronto, including most recently as the Director of Equity, Diversity & Inclusion the Rotman School of Management.

He is a recognized thought leader in governance and has taught thousands of directors in the national Rotman program on Not for Profit Governance in partnership with the Institute for Corporate Directors since its inception in 2007.

From Purpose to Commitment: How Emancipatory Leadership Can Take Root

 

The disparate impacts of the Covid-19 pandemic have created unprecedented challenges in our personal and professional communities. This moment has also publicly exposed the need for greater cohesion between organizational purpose and personal impact. As a national advocate for quality palliative care for all Canadians, clarity of purpose is essential to responding to the many crises we are privy to. Furthermore, cascading this purpose into daily choices across the communities that CHPCA serves is best enabled through an Emancipatory Leadership stance.

Through a highly interactive 60-minute From Purpose to Commitment plenary, conference participants will have the opportunity to test their ideas, assumptions, and beliefs thereby improving their leadership practices. Through this session participants will explore the different ways that this crisis has impacted their community and how they might evolve their leadership approach to meet those changes most impactfully.

Dr. Hsien Seow & Dr. Samantha Winemaker

Dr. Hsien Seow, PhD (Johns Hopkins School of Public Health), BSc (Yale University). He is an Associate Professor in the Department of Oncology, McMaster University and the Canada Research Chair in Palliative Care and Health System Innovation. He publishes health care research focused on improving palliative care for patients with serious illness. He has worked with various policy makers across North America including RAND Health, Health Canada, and various Ministries of Health. He is the co-host of the podcast, The Waiting Room Revolution.

 

Dr. Samantha Winemaker, MD (McMaster University), CCFP(PC), FCFP, BSc (Hons) (Western University). She is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She is a palliative care consultant in the greater Hamilton community. She has won numerous awards for her leadership and education to undergraduate medical students, family medicine residents, and clinicians. She is the co-host of the podcast, The Waiting Room Revolution.

Learnings from 1000 deaths: Seven skills to be hopeful and prepared when facing serious illness

Dr. Winemaker, a home-based palliative care physician, and Dr. Seow, a palliative care researcher, have cared for and interviewed thousands of patients and families as they faced death from a serious illness. They most often hear that patients and families feel overwhelmed, unprepared, and “in the dark” about what to expect next. Yet, some felt more prepared, in control, and “in the know.” What was the difference? They uncovered 7 skills that led patients and families from an “in the dark” to “in the know” experience. The skills enabled people to be more hopeful and prepared. Most importantly, the skills are simple and actionable at any stage in the illness journey. Thus, the skills can support an early palliative approach to care and ultimately change the story line of the illness experience. The skills are applicable to health care professionals, patients and caregivers. www.waitingroomrevolution.com

 

Learning objectives:

The objectives of this keynote are to:

1) Describe challenges to receiving an early palliative care approach;

2) Share 7 skills to being more hopeful and prepared when facing serious illness;

3) Discuss ways patients, families, and health care providers can apply these skills

Dr. Brian Goldman

Brian Goldman, MD, is one of those rare individuals with great success in not one but several adrenaline-pumping careers. Goldman is a highly regarded emergency physician at Mount Sinai Hospital in Toronto.  He is also the host of the Canadian Broadcasting Corporation’s award-winning radio show “White Coat, Black Art”, where he takes listeners behind the scenes of hospitals and doctor’s offices.  Goldman unpacks and demystifies what goes on inside medicine’s sliding doors – with edgy topics that include the whistle blowing in health care, burnout among health professionals, racism in health care and how to getting to the head of the line in health care.

Goldman is on a lifelong campaign to confront medical errors and create a culture of safety for patients.  He has proven unafraid of using his own medical mistakes for examples on how doctors can improve. His TEDtalk – “Doctors Make Mistakes. Can We Talk About That?” has been watched by close to a million viewers, and has been featured in The Huffington Post and NPRs TED Radio Hour.

Dr. Goldman has worked as a health reporter for The National, CBC Television’s flagship news program, for CBC-TV’s The Health Show, and served as senior production executive during the launch year of Discovery Health Channel, Canada’s only 24-hour channel devoted to health programming.

He is the author of the bestselling book The Night Shift:  Real Life in the ER, which takes readers through giddying heights and crashing lows as Goldman works through a typical night shift in one of Canada’s busiest ERs.  He is also the author of  The Secret Language of Doctors – published by Harper Collins in 2014 – which takes a biting look at medical slang.

As a veteran emergency room physician, Dr. Brian Goldman has a successful career setting broken bones, curing pneumonia, and otherwise pulling people back from the brink of medical emergency. He always believed that caring came naturally to physicians. But time, stress, errors, and heavy expectations left him wondering if he might not be the same caring doctor he thought he was at the beginning of his career. He wondered what kindness truly looks like—in himself and in others. In his latest book, The Power of Kindness, Goldman leaves the comfortable, familiar surroundings of the hospital in search of his own lost compassion.

Workshops

Making it Real – Using a “Brush With Death” to Change the Conversation

Presenter(s):

Jennifer Davis, Founder, Exit Matters

Fear of death limits people from starting vital conversations and engaging their right-brain opens them up to contemplate and share what deeply matters in their life. Through practices of creative activities to access imagination and laughter/play, participants will experience this opening and recognize the benefits for families navigating the death journey.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Implementation of the modified Hospital One-year Mortality Risk (mHOMR) tool: An automated approach to early identification of patients who would benefit from palliative care

Presenter(s):

James Downar, Head, Division of Palliative Care, University of Ottawa

Pete Wegier, Research Chair in Optimizing Care Through Technology, Humber River Hospital

Martin Chasen, Medical Director, Palliative Care, William Osler Health System

Julie Lapenskie, Research Associate, Bruyère Research Institute

 

In this workshop we will illustrate best-practice strategies for implementation of an automated tool – modified Hospital One-year Mortality Risk (mHOMR) – for early identification of patients who would benefit from palliative care. We will provide practical resources and tools to help hospitals develop a customized and sustainable approach to implementation.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Palliative Care ECHO® Project: A New Pathway for Continuous Online Professional Development

Presenter(s):

Jeffrey Moat, Chief Executive Officer, Pallium Canada

Dr. José Pereira, Scientific Officer, Pallium Canada

Nadine Henningsen, Chief Executive Officer, Canadian Home Care Association

The Palliative Care ECHO® Project is a 5-year national initiative to cultivate communities of practice and establish continuous professional development among health care providers across Canada who care for patients with life-limiting illness. As a capacity-building tele-mentoring program, it fosters an “all learn, all teach” approach.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

From Sirens to Connection: A Community Trauma-Informed Care Model for Supporting Grieving Families Following a Sudden Death

Presenter(s):

Sheila Bourgeois, Bereavement & Wellness Coordinator, Hospice Peterborough

Alice Czitrom, Victim Services Coordinator, Peterborough Police Services

This workshop will present a model of community collaboration to provide wrap-around trauma-informed support to families in the aftermath of a sudden death. Research and best practices will be presented as well as discussion of underserved populations. This model of collaboration will assist professionals to engage big-picture thinking when helping clients navigate complex grief during and following COVID-19.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Virtual Palliative Care intervention: Pain and Symptom Management through Relief app

Presenter(s):

Jehanara Chagani, Adavanced Practice Nurse, Home and Community Support Services Central West

Martin Chasen, Medical Director, william Osler Health System

RELIEF (remote self-reporting of symptoms by patients) is an e-Health app that enables patients to self-report their symptoms daily using validated assessment tools, thus allowing accurate assessment of patients’ symptoms, monitoring, and triaging. This information allows to provide timely intervention and treatment to support patients and their families receiving a palliative approach to care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The New Volunteer Lens; Practical Considerations to Recruit and Inspire Volunteers Post Pandemic and Onward

Presenter(s):

Amanda Maragos, Director of Client Services & Volunteer Programs, Philip Aziz Centre for Hospice Care & Emily’s House Children’s Hospice

It’s been over a year now that we’ve been assessing how COVID19 has impacted so many volunteer programs. So how do we translated what we already knew before about volunteers into something new that is adaptable to TODAY’S volunteers; who are walking, talking, feeling members of a pandemic influenced world? How do we meet the needs of volunteers feeling isolated, discouraged or even fearful sometimes while balancing our commitments to essential programming that is volunteer dependent? Where do we begin transformation, inspire creativity and where do we build resilience in our recruitment, retention and engagement strategies? It all starts by looking through our Volunteers’ NEW lens!

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Accelerating the Pan-Canadian Interdisciplinary Palliative Care Competency Framework into Action.

Presenter(s):

Deborah Dudgeon, Expert Advisor, Canadian Partnership Against Cancer

Kate Fillmore, Manager, Yukon Palliative Care Services, Government of Yukon

Jeffrey Moat, Chief Executive Officer, Pallium Canada

The Canadian Interdisciplinary Palliative Care Competency Framework directs the consistent implementation and measurement of palliative care competencies across Canada. Yukon Palliative Care Services’ ECHO Pallium project illustrates an example of the Framework in action. Pallium Canada’s Learner Journey webapp offers you an opportunity to test your own competency.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Nav-CARE: A program to support a compassionate community, palliative approach to care.

Presenter(s):

Gloria Puurveen, Researcher, University of British Columbia-Okanagan

Barb Pesut, Professor, University of British Columbia – Okanagan

Nav-CARE (Navigation: Connecting, Advocating, Resourcing, and Engaging), is an evidence-based volunteer navigation program developed to support people with declining health to live well and independently at home. This workshop will focus on how Nav-CARE is implemented in hospice palliative care organizations including how it coheres with the Compassionate Community approach.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Applying the Principles and Values of the Guidelines for Comprehensive Mental Health Services for Older Adults in Canada to practice and policy

Presenter(s):

Laura Mullaly, Program Manager, Mental Health Commission of Canada

Caroline Ostrom, Program Manager, Mental Heath Commission of Canada

The “Guidelines for Comprehensive Mental Health Services for Older Adults in Canada” outline several individual and system-level principles and values to ensure programs and services support the mental health of older adults.  Learn about the Guidelines, and a new easy-to-use checklist that helps  put these principles and values into action!

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

A Voice for Change: The HPCO Hospice Metrics Platform as an Improvement Tool

Presenter(s):

Christine Gordon, Director, Centre for Excellence, Hospice Palliative Care Ontario

The HPCO Hospice Metrics Platform includes tools to support the collection and analysis of client experience, volunteer experience and outcome data to demonstrate the impact and value of hospice services.  This workshop will demonstrate how the Metrics Platform can be used to support quality improvement and strategic planning processes.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Lights, Cameras,… Media! Shine in the spotlight…

Presenter(s):

Catherine Keill, CEO (Chief Eternal Optimist) and Lead Strategist, Keill & Company Inc.

Brookes Merritt, Government and Media Relations Strategist, Keill & Company Inc.

Using the workbook, the presenters walk through learning modules, provide a video / audio example or two, engage the audience in a conversation and explore concepts like media interviewing techniques and interviewee response pivots for sticking on message. A practical and useful session for all who will join either to learn new tricks or to refresh past learning.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Government Relations 101+

Presenter(s):

Catherine Keill, CEO (Chief Eternal Optimist) and Lead Strategist, Keill & Company Inc.

Dan St. Pierre, Communications and Government Relations Strategist, Keill & Company Inc.

The workshop will involve understanding decision-making structures and identifying points of influence around an issue, then will move participants through research and messaging activities to situate the issue in ways for key stakeholders, influencers and decision-makers. The workshop will touch on outreach best practices, strategy development and activations, lobbying rules and considerations, preparing for the interactions, and community engagement.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Canadian Society of Palliative Care Physicians Staffing Model for Palliative Care Programs

Presenter(s):

Dr David Henderson, MD, CCFP(PC), Canadian Society of Palliative Care Physicians

Dr Leonie Herx, MD,PHD, Clinical Director, Associate Professor Queens University, Canadian Society of Palliative Care Physicians

This workshop will explore a model to help develop a staffing plan for a specialist palliative care program.

Calculating staffing needs for specialist palliative care services is complex, and there is little published evidence to suggest best practice. Staffing needs are often dependent on factors such as patient demographics, access to primary care, competency levels, models of care, and geography, to name a few.

Recognizing these challenges, the CSPCP has developed a model based on a review of international literature, expert opinion from Canadian palliative care medical directors and feedback from key stakeholder groups.

In order to facilitate care for all patients throughout the many transitions, it is recommended that core competencies and understanding of a palliative approach to care be developed in all practice settings for all disciplines.

With this workshop we will describe the model and provide an interactive experience using the model to calculate the staffing needs for various communities.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Journey Home Hospice Team Experience:  Building Responsive Hospice Palliative Care for Marginalized Populations

Presenter(s):

Sheri Bergeron, MD, Medical Director, Journey Home Hospice/Saint Elizabeth Health/SE Health

Felicia Kontopidis, RN, Director of Care, Journey Home Hospice/Saint Elizabeth Health/SE Health

This presentation will discuss our admissions criteria, population-tailored model of care and efforts to provide advance care planning and after-death care for individuals without the typical socio-economic and structural supports expected in the average hospice population.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

From Scarcity to Abundancy:  Volunteers as link between Compassionate Communities and Health Human Resource

Presenter(s):

Tina Lowery, Project Manager, BC Centre for Palliative Care

Melody Jobse, Community Engagement Lead, BC Centre for Palliative Care

Using an asset-based approach that values and mobilizes the expertise, capacity, skills, knowledge, connections and potential in a community through your volunteers you will see that you have the right people, doing the right work, at the right time.  Shifting your thinking from one of scarcity to abundance!

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Grief Circles: a team-based debriefing intervention to support workers serving structurally vulnerable patients receiving palliative care

Presenter(s):

Cam Matamoros, Dr, Department of Community and Family Medicine, University of Toronto

Leeann Trevors, Ms, Inner City Health Associates

Alissa Tedesco, Dr., Inner City Health Associates

Trevor Morey, Dr, Inner City Health Associates

This workshop presents Grief Circles as a hands-on approach to addressing grief in group care settings and introduces the 4R model developed by Eugene Dufour and used in Grief Circles for facilitating shared grieving among teams providing care to structurally vulnerable patients receiving palliative care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

From quiet conversations to a booming ECHO: the story of building connection and practice support for isolated care providers

Presenter(s):

Kathleen Yue, Director, Strategic Initiatives, BC Centre for Palliative Care

Mary Coleman, Social Worker, Canuck Place Children’s Hospice

Marney Thompson, Director, Psychosocial Services, Victoria Hospice

ECHO has been used internationally as a model to facilitate continuing education, mentorship and competency development. Through online sessions, health care professionals who were feeling isolated in their palliative practice have been connected in a community. In this session, you will explore ways to understand the needs in your context and create innovative ways to meet those needs.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Path to Spiritual Care Specialization in Palliative and Bereavement Care

Presenter(s):

Peter Barnes, Psychospiritual Therapist, Spiritual Pathways

Vivian Stang, Spiritual Care Practitioner, The Ottawa Hospital

Heather Koots, Reverend, United Church of Canada

Christine Enfield, Program Chaplain, Tertiary Palliative Care Unit, Grey Nuns Community Hospital  Covenant Health

 

The workshop participants will be asked to explore the possible benefits of heightened specialization of Spiritual Care professionals to the Palliative and Bereavement Care patients/clients and to the Interprofessional Care Team providing quality Palliative and Bereavement Care. This research project was supported by the Canadian Association for Spiritual Care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Becoming a Compassionate Community: “The Compassionate Ottawa Story”

Presenter(s):

James Nininger, Co-founder and Board Member, Compassionate Ottawa

Mary Lou Kelley, Volunteer Project Manager, Compassionate Ottawa

This presentation will showcase and discuss a new 8-minute video created by Compassionate Ottawa to be a catalyst for community leaders to mobilize and develop compassionate community initiatives across Canada. Compassionate Ottawa (www.compassionateottawa.ca) is a community-driven organization that aims to change how we think about dying, death, grief and loss.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Canadian Atlas of Palliative Care: Mapping the Present to Meet Future Palliative Care Needs

Presenter(s):

Jeffrey Moat, CM, Pallium Canada

José Pereira, MBChB, McMaster University and Pallium Canada

This interactive workshop will describe the goals of the Canadian Atlas of Palliative Care as a mapping tool and change agent. ‘Mapping the present enables meeting future palliative care needs’.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Stories of Giving and Receiving Help in Later Life: A Digital Story Pilot Project

Presenter(s):

Mary Lou Kelley, Project Manager (Volunteer), Compassionate Ottawa

Arne Stinchcombe, Assistant Professor, Brock University

This workshop screens three digital stories about giving and getting help in later life, and provides evaluation data on digital story use to trigger conversations, change attitudes and behaviors. The stories were created by people with lived experience and were sponsored by Compassionate Ottawa for use in community education.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Pan-Canadian Compassionate Communities Evaluation Framework and Toolkit – Supporting evaluation from the bottom-up

Presenter(s):

Bonnie Tompkins, Compassionate Communities National Lead, Pallium Canada

Dr. Eman Hassan, Executive Director, BC Centre for Palliative Care

Julie Darnay, Director, Education & Strategic Partnerships, Hospice Palliative Care Ontario

This workshop will describe how Canadian Compassionate Community initiatives can develop and administer their evaluation to measure the results and impact of their work. We will discuss the Pan-Canadian Compassionate Communities definition and stages of development and demonstrate how the project’s evaluation framework and interactive website can be used to build their unique evaluation plan.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Care Maps Program – Visualizing your support network and fostering conversations

Presenter(s):

Bonnie Tompkins, Compassionate Communities National Lead, Pallium Canada

The Care Map Program workshop showcases a new tool for caregivers, allowing them to visually see their support network, broaden the network and share it with family, friends, and their health care professional. Participants will create a map and learn about the community workshop and module for health care professionals.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Bringing Compassionate Leadership to Foster Teamwork And Quality Improvement in Palliative Care

Presenter(s):

Sharon Baxter, sharonbaxterconsulting@gmail.com, Hospice Palliative Care Executive consultant

Susan Blacker, Senior Director, Cancer and Palliative Program, Sinai Health System

Nadine Valk, Executive Director, Champlain Hospice Palliative Care Program

Providing compassionate leadership often involves helping staff to develop ideas for new and improved ways of doing things, be it providing delivery of health services and programs supporting patients and their families/friends/caregivers. This can include change management and inspiring an environment of improvement.

This session will be both didactic and interactive with activities developed to make this a practical learning experience.

Case studies (sharing examples) will be used so we learn from the experiences.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

De-colonizing health care systems

Presenter(s):

Len Pierre, Cultural Advisor Harm Reduction, First Nations Health Authority

Nicole Wikjord, Clinical Nurse Specialist, First Nations Health Authority

Sue Bartnik, Practice Consultant, First Nations Health Authority

The workshop will review how colonization continues to impact Indigenous populations; specifically First Nations communities in BC, and those on their final journey.  FNHA is trying to decolonize palliative care.  Two staff will share their stories of becoming anti-racist. Finally, we will provide practical advice on how to decolonize participants own practice settings and how to position antiracism into practice.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Moving ACP Further Upstream for Underserved Populations With an Easy Read Advance Care Planning Workbook

Presenter(s):

Cari Borenko, Regional Lead, Advance Care Planning, Fraser Health Authority

Lauren Thomas, Advance Care Planning Nurse Clinician, Fraser Health Authority

Andrew Saunderson, Advance Care Planning, Social Worker, Fraser Health Authority

Fraser Health Authority’s Regional ACP Team recently co-created a picture based, simplified Easy Read workbook. It supports anyone who may process information differently. This interactive workshop will discuss and review this equity-focused workbook that meets underserved persons and support you to explore ways to adapt this for your community.

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Moving Advance Care Planning Further Upstream through Systems-Level Leadership

Presenter(s):

Andrew Saunderson, Social Worker, Advance Care Planning, Fraser Health Authority

Lauren Thomas, Nurse Clinician, Advance Care Planning, Fraser Health Authority

Cari Borenko, Lead, Advance Care Planning, Fraser Health Authority

Systems-level leadership is essential to creating sustainable change and moving Advance Care Planning further upstream. Our team developed a Systems Leadership Mastermind Group, which includes relevant tools, prioritizing workflow redesign, and coaching. Participants will gain the knowledge, skills, and confidence to create, adapt, and utilize these resources within their communities.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Serious Illness Conversations with Structurally Vulnerable Patients: A comprehensive guide & teaching tool

Presenter(s):

Kelsey Antifaeff, Registered Clinical Social Worker, Vancouver Coastal Health

Wallace Robinson, Leader of Advanced Care Planning & Registered Social Worker, Providence Health Care

Ruth McRedmond, Critical Care Physician & Clinical Assistant Professor at UBC, Providence Health Care

Do you struggle with care planning conversations with clients who are seriously ill and experiencing substance use concerns, mental health issues, and/or homelessness?  Do you have a sense that the conversation needs to be inclusive and trauma-informed but not sure how to proceed?

 

Join us to learn about a new approach for serious illness conversations with structurally vulnerable patients in acute care: a trauma-informed, evidence-based guide for better conversations.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Advance Care Planning Workshop in a Box

Presenter(s):

Karine Diedrich, Director, Advance Care Planning Canada, Canadian Hospice Palliative Care Association

The Advance Care Planning (ACP) Universal Workshop in a Box was designed to provide a wide range of organizations the information and tools they need to introduce Canadians to ACP. Participants will learn about this new resource, available peer supports and the growing community of ACP workshop facilitators in Canada.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

CaringTogether.life: The Voice of family’s caring for a seriously ill child

Presenter(s):

Adam Rapoport, Medical Director, Hospital for Sick Children (SickKids)

Carla Garrett, Parent, Author, Freelance Writer, Canadian Virtual Hospice

The Canadian Virtual Hospice worked with families caring for or who have cared for a seriously ill or dying child, specialists in pediatric palliative care and researchers to develop a purpose-built webspace. Funded by Health Canada, it provides evidence-based information on pediatric palliative care issues to support Canadian families and healthcare providers.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Addressing the palliative care needs of those who identify as Two-Spirit and LGBTQ+

Presenter(s):

Katherine Kortes-Miller, Educator, Researcher, Author & Speaker, Lakehead University

Albert McLeod, Executive Director, Two-Spirit People of Manitoba

The concerns, challenges, and needs of Two-Spirit and LGBTQ+ people living with advanced illness are poorly understood and often underserved by palliative care. This session features a panel discussion and will highlight new tools available to healthcare providers to improve the provision of 2SLGBTQ+ person-centred care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

A Profound Gap: Improving Palliative Care for Indigenous Peoples

Presenter(s):

Holly Prince, Project Manager, Lakehead University

Albert McLeod, Executive Director, Two-Spirit People of Manitoba

This workshop will explore culturally safe and relevant palliative care for Indigenous people across Canada. Led by an Elder and Holly Prince, participants will explore the topics of culturally safe palliative care, Advance Care Planning, and personhood. A new series of tools will be highlighted, developed by Indigenous people for Indigenous people that empower and support Indigenous patients, families, communities, and healthcare providers.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Beyond Gabapentin: Advanced approaches to irritability in children with neurologic impairment

Presenter(s):

Joanna Humphreys, Dr, McMaster University

Gregorio Zúñiga, Dr, McMaster

Dave Lysecki, Dr, McMaster University

Irritability is challenging in neurologically impaired children. It is the manifestation of different underlying diagnoses and different medications are needed for symptom control.

We will review cases with varied underlying diagnoses and discuss the characteristics that informed our medication choices, aiming to improve participants’ ability to manage this debilitating symptom.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Advance Care Planning in Canada: Resources & Tools for Long-Term Care Practitioners

Presenter(s):

Karine Diedrich, Director, Advance Care Planning in Canada, Canadian Hospice Palliative Care Association

Sharon Kaasalainen, Professor, School of Nursing & Gladys Sharpe Chair in Nursing, McMaster University

Long-term care teams are in an ideal position to help residents and families talk about Advance Care Planning (ACP). But where do they start? Advance Care Planning in Canada is here to help. Discover our suite of resources and tools supporting long-term care practitioners.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Understanding how First Nations people Grieve

Presenter(s):

Jo-Anne Gottfriedson, Ms, IRSSS

Sue Bartnik, Ms, First Nations Health Authority

Nicole Wikjord, Ms, First Nations Health Authority

This workshop will:

  • Describe some of the traditional protocols and cultural practices that are used by First Nations people in British Columbia
  • Discuss the impacts of these practices and protocols on First Nation people and on those who come into contact with them
  • Share ways we can build respect and support for these practices and protocols into our own practice.
  • Experience traditional healing, to have greater acceptance, respect and cultural humility towards First Nations people.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Utilizing State-of-Science Stakeholder Analysis for Effective Engagement

Presenter(s):

Tyler Hamil, Project Coordinator, Covenant Health Palliative Institute

Jingjie Xiao, Research Coordinator, Covenant Health Palliative Institute

Our institute is leading several initiatives to identify and engage key palliative care stakeholders at the provincial and national level. This discussion will utilize strategies to survey both individuals (ie public) and organizations. Tailored engagement strategies are the key to bring these stakeholders towards a common agenda.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

You Only Die Once -How one small film contest can spark big conversations

Presenter(s):

Sheli O’Connor, Director, Community Engagement & Partnerships, Hospice Waterloo Region

Sandra Muir, Owner/Communications Consultant, Platypus Marketing and Communications

Heather Steinmann, Assistant, Client Services, Hospice Waterloo Region

In 2020/21, Hospice Waterloo Region and the Grand River Film Festival launched You Only Die Once: #YODOContest — a short-film contest challenging local filmmakers to tell stories that engage the public in conversations about death, dying and grief. Learn how storytelling, community partnerships, and a commitment to social media led to the success of this public challenge.

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Oral Presentations

Children’s Healthcare Utilization and Cost in the Last Year of Life: A Cohort Comparison With and Without Regional Specialist Pediatric Palliative Care

Presenter(s):

Dave Lysecki, Pediatric Palliative Care Physician, McMaster Children’s Hospital

A cohort comparison study found that child decedents from a region with specialist pediatric palliative care services had fewer mean healthcare days, lower mean healthcare costs, fewer mean intensive care days, and a lower proportion of in-hospital death than child decedents from a comparable region without specialist pediatric palliative care services.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Queering End of Life Care

Presenter(s):

Mono Brown, Professor, Langara College

 

Recent research, for example by Rosa, Shook, and Acquavia (2020), therefore explores the ways in which palliative care might be made more inclusive. This presentation introduces common end-of-life fears, anxieties, and concerns of members of LGBTQIA2S+ communities and connects them to structural barriers in Canadian hospice and palliative care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Definition and validation of a panel of quality indicators sensitive to nursing care: study in the context of a palliative care unit

Presenter(s):

Jorge Pereira, Mr., Palliative Care Unit at Hospital CUF Porto (Porto, Portugal)

The expectations of customers and families are increasingly high, considering the evolution of systems and services that provide health care. Nursing must have an active and proactive action in what is the the participation and involvement with the systematization of management and the promotion of the quality of health care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Measuring What Matters: The Development and Validation of a Patient Reported Compassion Measure for Research, Practice and System Change (SCQ)

Presenter(s):

Shane Sinclair, Dr., University of Calgary

The Sinclair Compassion Questionnaire is a valid and reliable patient reported compassion measure, providing: researchers with the means to conduct high-quality compassion research; healthcare providers a clinical tool for routinely and rigorously assessing compassionate care; accreditors with the ability to begin to develop standards; and system leaders with the ability to benchmark and embed compassion as a quality care indicator.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

A phenomenological study of the death doula approach to end of life care

Presenter(s):

Mary-Anne Parker, Ms., MayYouFareWell

An examination of the death doula role/approach within the context of end-of-life care, including the positioning of a phenomenological-based lexicon to aid in the understanding of the role.  The goal will be to start the discussion around how these types of emerging support roles complement care for the family systems and behaviours that emerge in end of life situations.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

How often do home care clients experience potential quality issues? Analysis of existing interRAI data from across Canada

Presenter(s):

Dawn Guthrie, Professor, Wilfrid Laurier University

This presentation will provide an overview of the rates of potential quality issues (e.g., severe/excruciating pain, caregiver distress) across Canada. The quality indicator rates will be generated using existing data collected with one of the interRAI instruments, namely, the Resident Assessment Instrument for Home Care (RAI-HC).

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

“We’re not a hindrance; we’re an enhancement”: Community organization perspectives on barriers and facilitators to Advance Care Planning in BC

Presenter(s):

Ellie Siden, Medical Student, University of British Columbia

Eman Hassan, Executive Director, BC Centre for Palliative Care

Community-based non-profits place a vital role in public Advance Care Planning (ACP) education, but their perspectives are often excluded from research in this area. We surveyed and interviewed B.C. non-profits involved in ACP to explore what they felt to be the biggest barriers and facilitators to ACP.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Educational Needs of Professional Hospice Staff: An Ethnographic Inquiry

Presenter(s):

Andrea Mason, Palliative Community Care Coordinator RN BSN, Alberta Health Services/University of Calgary

Engaging in research with a focused ethnographic methodology at a hospice in Alberta, I examined the setting culture to understand how this shapes the educational needs of staff. This presentation will focus on the research methodology, findings and recommendations for further research, and education for staff in palliative care settings.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The untold stories of MAiD in Ontario: Family and loved ones’ experiences

Presenter(s):

Kathy Kortes-Miller, Associate Professor, Lakehead University

Keri-Lyn Durant, PhD(c), Lakehead University

The purpose of this research project is to understand the experiences of family and friends that accompany a loved one throughout their dying process involving MAiD in the province of Ontario. This presentation will share findings from 27 interviews that were conducted with participants across Ontario.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Evaluating the impact of a health navigator on improving access to care and addressing the social needs of homeless palliative care patients in Toronto, Ontario

Presenter(s):

Lilian Robinson, Family Medicine Resident, Department of Family and Community Medicine, University of Toronto

Leeann Trevors, Health Navigator, PEACH (Palliative Education and Care for the Homeless) Program, Inner City Health Associates

Trevor Morey, Staff Physician, PEACH (Palliative Education and Care for the Homeless) Program, Inner City Health Associates

Health navigators are healthcare professionals who specialize in case management, navigating transitions, and reducing barriers to care. Participants will learn how a health navigator could add value to their community-based palliative care team, and gain skills in measuring the impact of a health navigator on care delivery and organizational growth.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Le deuil en contexte de pandémie : vers une compréhension de l’expérience de proches aidants à la lumière des métaphores présentes dans leur récit

Presenter(s):

Alexandra Guité-Verret, PhD Student in psychology, Université du Québec à Montréal

Cette étude qualitative présente l’expérience de vingt endeuillés Québécois ayant perdu un proche de la COVID-19. Les résultats de l’analyse métaphorique suggèrent que les endeuillés décrivent leur expérience en termes de coupure, de blocage et d’ondes de chocs, mettant ainsi en lumière une triple quête dans le processus de deuil.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

Transition program to support nurses integrating a palliative care setting

Presenter(s):

Marie-Laurence Fortin, Infirmière conseillère cadre, CIUSSS Centre-Ouest de-l’île-de-Montreal

Isabelle Bilodeau, Infirmière conseillère cadre, CIUSSS Centre-Ouest de-l’île-de-Montreal

Evolution is a structured educational and support program designed for newly graduated nurses to facilitate the transition period. Our presentation will describe the program, discuss how it was tailored to the palliative care context, the feedback we have received from participants and our future vision for Evolution in palliative care.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

Saying goodbye in the age of physical distancing

Presenter(s):

Kathy Kortes-Miller, Associate Professor, Lakehead University

Susan Cadell, Professor, University of Waterloo

The COVID-19 pandemic continues to have a profound impact on people’s experience of dying, death, grief and loss. The act of saying goodbye to a person who is dying often begins while a person is dying, before a funeral. COVID-19 has rendered caring, grief and connecting with loved ones at the end of life even more challenging than usual. The purpose of this qualitative  research project is to examine the experience of family and informal support networks (friends) who accompanied someone throughout their dying process during the COVID pandemic in Northwestern Ontario and the region of Waterloo.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Talking About Death Book chats

Presenter(s):

Mary Lou Kelley, Professor Emeritus/Volunteer, Compassionate Ottawa

Kathy Kortes-Miller, Associate Professor, Lakehead University

This presentation will describe and provide evaluation data for a community education project implemented by Compassionate Ottawa and in Northwestern Ontario using book chats; small groups of individuals who independently read a book and then meet as a group to discuss the book’s major themes and its impact on them.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Promoting Equity through Hospice Standards and Accreditation: How HPCO is reviewing its Standards to Enhance Equity in Access

Presenter(s):

Christine Gordon, Director, Centre of Excellence, Hospice Palliative Care Ontario

Dianne Balraj, Intern, Hospice Palliative Care Ontario

Hospice Palliative Care Ontario (HPCO) is reviewing its Hospice Standards for greater integration of Anti-Racism, Equity, Diversity, and Inclusion principles. Currently, this effort focuses predominantly on equity in access to hospice palliative care. This presentation describes the tools and processes informing this work, challenges, implications, and lessons learned to date.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Health equity in an urban Palliative Care Unit in Toronto, Ontario – A retrospective chart review

Presenter(s):

Naushin Walji, Dr., Sinai Health

This oral presentation will share a retrospective chart review completed of a palliative care unit (PCU) in Toronto, Ontario. The study utilized a health equity lens to analyze demographic data of patients admitted to the PCU with the aim of determining whether this PCU equitably serves the surrounding population.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Acceptability of Automatic Referrals to Supportive and Palliative Care by Patients Living with Advanced Lung Cancer: A Co-Design Process

Presenter(s):

Vanessa Slobogian, Clinical Nurse Specialist, Alberta Health Services

Patient acceptability of automatic referrals and contact from a palliative care provider is unknown. Our group- Palliative Care Early and Systematic (PaCES) sought to co-design with patients and providers the operational, communication and evaluative processes for automatic PC referral for patients newly diagnosed with stage IV lung cancer.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Promoting Engagement of People Living with Dementia and Family/Friend Caregivers in Advance Care Planning through Community-led Programs

Presenter(s):

Kathy Sheng, Ms., BC Centre for Palliative Care

Myrna Norman, Ms., BC Centre for Palliative Care

The presentation will provide an overview of learnings from, and resources developed as a part of a two-year project aimed to promote the engagement of people living with dementia and family/friend caregivers in Advance Care Planning through community-led programs.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Understanding the impact of COVID-19 on grief and bereavement in BC: a province-wide current state analysis

Presenter(s):

Kathleen Yue, Director, Strategic Initiatives, BC Centre for Palliative Care

Anica Butters, Research Assistant, BC Centre for Palliative Care

The COVID-19 pandemic has affected how people grieve. To understand the changes in the provision of bereavement services, we conducted a province-wide current state analysis. This will inform a provincial roundtable discussion to identify priority actions and strategies to address unmet needs of those bereaved during the pandemic.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Interventions for Grieving and Bereaved Informal Caregivers: Implications From A Scoping Review of the Canadian Literature

Presenter(s):

Carly Thrower, MHSc Candidate, University of Toronto

Christopher Klinger, PhD, University of Toronto, National Initiative for the Care of the Elderly, Pallium Canada, and Quality End-of-Life Care Coalition of Canada

The objective of this scoping review was to examine the types of grief and bereavement interventions geared toward informal caregivers in Canada. Healthcare providers, policy makers, and researchers need to acknowledge the importance of providing evidence-based interventions for informal caregivers. Interdisciplinary collaborations are required to develop, evaluate, and scale these.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Adapting and translating an Advance Care Planning public education model for Chinese and South Asian Communities – Experiences and Recommendations from a provincial initiative in BC.

Presenter(s):

Rachel Carter, Research Manager, BC Centre for Palliative Care

Eman Hassan, Executive Director, BC Centre for Palliative Care

Existing Advance Care Planning resources are underutilised by many cultural groups, therefore we culturally and linguistically adapted a community-led Advance Care Planning education program for Chinese and South Asian communities. In this presentation we will share the adaptation process followed, as well as our experiences and recommendations for similar adaptations.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Evaluation of a culturally and linguistically adapted Advance Care Planning sessions for Chinese and South Asian Communities in BC.

Presenter(s):

Eman Hassan, Executive Director, BC Centre for Palliative Care

Pam Martin, Evaluation Lead, BC Centre for Palliative Care

To address low uptake by many cultural groups, we culturally and linguistically adapted a community-led Advance Care Planning (ACP) education program for Chinese and South Asian communities. Evaluation results indicate that these communities find our adapted program culturally acceptable and that it enhances levels of ACP awareness, knowledge and engagement.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Supporting clinicians to adopt a culturally considerate approach to Advance Care Planning conversations with patients

Presenter(s):

Eman Hassan, Executive Director, BC Centre for Palliative Care

Rachel Carter, Research Manager, BC Centre for Palliative Care

There are disparities in Advance Care Planning engagement rates among culturally diverse communities. To address this we developed an online learning course to help healthcare providers apply a culturally considerate and safe approach and appropriate communication skills when conducting advance care planning conversations with their Chinese or South Asian patients.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

MAiD bereavement experiences through digital storytelling

Presenter(s):

Keri-Lyn Durant, Ms., Lakehead University

Kathy Kortes-Miller, Dr., Lakehead University

Digital storytelling affords often untold stories opportunities to be created and disseminated, offering transformational experiences to both creator and viewer. In this presentation, details of the process as well as several products of our study, The untold stories of MAiD in Ontario: Family and loved ones’ experiences, will be shared.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Prodiguer des soins de fin de vie en première vague de COVID 19 : impuissance et détresse morale

Presenter(s):

Deborah Ummel, professeure, Université de Sherbrooke

Mélanie Vachon, professeure, Université du Québec à Montréal

L’expérience de soins en contexte de COVID-19 au Québec est décrite : l’impuissance face à la souffrance des patients, l’effet durable de la confrontation répétée à la mort, dans des circonstances pénibles et les répercussions sur la vie personnelle. Des recommandations de formation et d’accompagnement pour les soignants sont proposées.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

Enhancing clinical reasoning in palliative care education –an innovative design of simulated case scenario in online curriculum

Presenter(s):

Jiahui Wong, Scientist and manager, de Souza Institute, University Health Network

Jerusha Ellis, Education Specialist and Medical Illustrator, de Souza Institute, University Health Network

Cathy Kiteley, Advanced Practice Nurse Educator, de Souza Institute

Using examples from de Souza Institute’s new online palliative care course series, this presentation provides you with strategies and a ready-to-use template for developing self-directed virtual simulation activities that help learners practice clinical reasoning in palliative care education.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Home and Community-based Palliative Care: Shaping the Future from Lessons Learned during the COVID-19 Pandemic

Presenter(s):

Beck Dysart, Policy Analyst, Health Canada

Elan Graves, Senior Policy Analyst, Health Canada

The COVID-19 pandemic has  profoundly impacted  home and community palliative care, straining limited resources and highlighting existing inequalities in  access to care.  This presentation will share leading practices, used to address pandemic challenges from across Canada.  The Toolbox to be shared is  adaptable across jurisdictions both within the COVID context and beyond.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Healthy End of Life Project (HELP) Ottawa: Mobilizing, Implementing and Monitoring Impact

Presenter(s):

Pam Grassau, Assistant Professor, School of Social Work, Carleton University

Hayley Miloff, Project Coordinator, Carleton University

Charles Barrett, Steering Committee Chair, Compassionate Ottawa

Healthy End of Life Project (HELP) Ottawa is a community-based research initiative based in four community sites in Ottawa, Ontario (two community health centres and two faith communities). Each site has implemented a range of programs, resources and pathways to strengthen, build and sustain a local, public health palliative approach to care.  Highlighted will be our mid-point evaluation data reflecting critical learning around partnerships, programs and evaluation.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Current state, challenges, and successes of compassionate communities in British Columbia

Presenter(s):

Jasper Yoo, Research Student, BC Centre for Palliative Care

Eman Hassan, Executive Director, BC Centre for Palliative Care

A compassionate community is a community of people actively supporting those affected by a serious health challenge, caregiving, dying, or experiencing grief. This presentation will discuss current compassionate community activities in BC, some of their successes and challenges, resources and supports for activity improvement, and opportunities for future projects.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Healthy Mourning in a Grief Pandemic

Presenter(s):

Maria Kliavkoff, Executive Director, Healthy Mourning Revolution

In a time when the world is experiencing an on-slot of grief, it has become vital for Hospice Bereavement Programs to up-level their skillset.  Join us as we explore the realities, special features, challenges and opportunities of walking with our clients through the grief pandemic.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Les facteurs menant à l’utilisation du protocole de détresse respiratoire (PDR) et les impacts de son administration chez les personnes âgées en fin de vie

Presenter(s):

Florence Martineau, Étudiante à la maîtrise avec mémoire en sciences infirmières, Université Laval

Diane Tapp, Professeure agrégée, Faculté des sciences infirmières de l’Université Laval

Une étude rétrospective de cohorte, actuellement en cours, vise à déterminer les facteurs menant à l’utilisation du PDR et ses impacts auprès des personnes âgées en fin de vie dans différents milieux de soins au Québec. Lors de cette présentation, les résultats préliminaires de cette étude seront présentés.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

Creating online learning that won’t put learners to sleep

Presenter(s):

Katherine Green, Medical student, BC Centre for Palliative Care

Kathleen Yue, Director of Strategic Initiatives, BC Centre for Palliative Care

A clinical scenario-based online module was developed with the goal of creating an engaging and widely accessible educational resource for care providers in non-palliative settings on the basics of palliative care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Predictors of Palliative Home Care Costs in Ontario, Canada

Presenter(s):

Clare Cheng, Ms., University of Waterloo

This presentation will provide an overview of recent research on home care service utilization patterns and costs of palliative home care clients in Ontario. Emphasis will be placed on client characteristics associated with palliative home care costs.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Les visages de l’aide

Presenter(s):

Michelle de Courville Nicol, Membre du Conseil d’administration, Compassionate Ottawa

Jean-Pierre Soublière, Membre du Conseil d’administration, Compassionate Ottawa

Cet atelier présente un projet d’éducation communautaire novateur parrainé par Compassion Ottawa : la création et l’utilisation de récits numériques pour déclencher des conversations sur la fin de vie et favoriser une meilleure compréhension de l’expérience de donner et de recevoir de l’aide plus tard dans la vie.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

Compassionate Community Sustainability Guide – A road map to ensure your initiative keeps moving forward

Presenter(s):

Bonnie Tompkins, Compassionate Communities National Lead, Pallium Canada

This presentation provides Compassionate Community (CC) initiatives with knowledge and supports, guiding them when engaging with the community, applying for funding, strengthening partnerships and more. Participants will learn about the Compassionate Community Sustainability Guide, the latest support from Pallium focused on helping these initiatives become stronger and increasing their impact.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Into The Clearing – A phenomenological study of the death doula approach to end of life

Presenter(s):

Mary-Anne Parker, Ms., MayYouFareWell

An examination of the end-of-life doula role within the context of end-of life care.  Using a phenomenological approach, a description of the role is developed from lived experience and explained within a philosophical framework.  Categories of care describe how the end-of-life doula role is a valuable complement to current care praxis.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Palliative care in the time of COVID: Nurses’ moral suffering

Presenter(s):

Christine McPherson, Dr, University of Ottawa

We present findings from an in-depth qualitative inquiry of seventeen Canadian palliative care nurses’ moral experiences providing care within the COVID-19 pandemic. In this, we discuss the conditions that give rise to moral suffering and raise awareness of the harmful effects of nurses’ fractured moral experiences. The findings give voice to what is at stake for nurses and opens dialogue on ways to support nurses’ ethical practice and mitigate the harms of moral suffering.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The KAR Project: Knowledge, attitudes and representations about end-of-life practices in the Province of Quebec.

Presenter(s):

Diane Tapp, Associate professor, Laval University

This mixed study aimed to compare the knowledge and attitude of Quebecers in relation to end-of-life practices and to assess the influence of knowledge on the attitude towards medical assistance in dying and palliative sedation.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Assessment and Management of Constipation

Presenter(s):

Philippa Hawley, Medical Direcor, Pain & Symptom Management./Palliative Care, BC Cancer

Different kinds of constipation will be described, and the tools for patient assessment will be discussed, focusing on the Victoria Bowel Performance Scale. The need for clear and consistent documentation will be emphasized. A simple approach to bowel protocol design will be presented.

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Increasing Government Sector Engagement in Advance Care Planning Using a Life Journey Approach

Presenter(s):

Michelle Goonasekera, Program Assistant, Palliative Institute, Covenant Health

Introducing ACP earlier in an individual’s life journey may lead to greater uptake. Government ministries have relationships and systems well positioned to further ACP. Our research explores opportunities within government to provide resources and early navigation on ACP to the public

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

L’impact de l’évaluation et de l’intervention infirmière dans l’utilisation du protocole de détresse respiratoire (PDR) chez les patients âgés et en fin de vie.

Presenter(s):

Marie-Eve Cimon, infirmière clinicienne, ét. maîtrise en sciences infirmières, Université Laval

Diane Tapp, Professeur agrégée et Chercheuse, Université Laval – CRIUCPQ-UL

Cette présentation décrit et évalue la contribution des activités d’évaluation et d’interventions infirmières dans l’utilisation du protocole de détresse respiratoire (PDR) chez les patients âgés et en fin de vie. Des données descriptives ainsi que des recommandations cliniques concernant la surveillance et la prise en charge des patients âgés dyspnéiques en fin de vie seront présentées.

 

Language of Presentation: French

Please note, sessions will be presented in the language noted and will not be translated.

PACE for PSWs – Palliative Care Education for PSWs

Presenter(s):

Katherine Murray, Founder of Life and Death Matters, Life and Death Matters

Julie Darnay, Director, Education & Strategic Partnerships, Hospice Palliative Care Ontario

Karine Diedrich, Director, Advance Care Planning in Canada, Canadian Hospice Palliative Care Association

In this oral presentation we will introduce the Canadian Palliative Care Education for Personal Support Workers program (PACE for PSWs www.PACEforPSWs.ca), developed by a collaboration between the Canadian Hospice Palliative Care Association, Hospice Palliative Care Ontario and Life and Death Matters.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Bridging the gap: Youth advisors’ expert advice for supporting grieving youth

Presenter(s):

Antonietta Gutierrez, Youth Advisory Committee Member, Dr. Jay Children’s Grief Centre / Canadian Virtual Hospice

Hailey Spero, Youth Advisory Committee Member, Dr. Jay Children’s Grief Centre / Canadian Virtual Hospice

Hope McMaster, Youth Advisory Committee Member, Dr. Jay Children’s Grief Centre / Canadian Virtual Hospice

Ceilidh Eaton Russell, Certified Child Life Specialist, Canadian Virtual Hospice / McMaster University

This panel discussion will explore the experiences of five young people grieving the death of a parent. They will share experiences and insights about what helped (and didn’t), what others need to know about being and supporting a grieving young person, with practical strategies and recommendations for caregivers and clinicians.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

What role do Death Cafés play in raising awareness of palliative care?  An investigation of Death Cafés in Alberta

Presenter(s):

Mary-Ann Shantz, Dr., Covenant Health Palliative Institute

This presentation shares findings from a literature review, a survey and focus groups conducted with Death Café facilitators in Alberta. Despite significant interest in Death Cafés within the field of palliative care, there is little evidence that palliative care emerges as a significant topic of conversation at Death Cafés.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

The Conversation Project: A Public Education Tool for End-of-Life and Palliative Care?

Presenter(s):

Mary-Ann Shantz, Project Coordinator, Covenant Health Palliative Institute

This presentation shares results of a literature review of The Conversation Project and an environmental scan of its application in Canada. Used in community and clinical settings, The Conversation Project is a well-reviewed ACP tool. It does not incorporate education about what palliative care is or what it can offer.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Implementing a Compassionate Communities Framework to Raise Public Awareness of Palliative Care in Alberta

Presenter(s):

Mary-Ann Shantz, Project Coordinator, Covenant Health Palliative Institute

This presentation outlines a Compassionate Communities approach to increasing public understanding of palliative care in Alberta using stakeholder analysis to identify networks and strategies for engagement and group concept mapping to establish priorities. These will inform the adaptation of educational resources for uptake in local communities, in partnership with stakeholders.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Providing a Palliative Approach to Care across settings; Emergency Department, ICU, Place of residence (Personal Care Home).

Presenter(s):

Jackie Santiago, RN M.Ed., Red River College

The COVID-19 pandemic created a surge in demand for a palliative approach to care across all settings. The health care providers were asked to pivot from the settings usual focus of care to apply a palliative approach in their settings and all what this approach encompassed. This presentation will provide the participants the tools to integrate the palliative care approach to settings such as the emergency department, intensive care units and personal care homes.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Covid19 Psychological Trauma and the Implications for Loss, Grief and Bereavement Care: The Emergence of a Vital Grief Risk Assessment Screening Tool

Presenter(s):

Rosemary Gravelle, Dr., Marian University

PTSD will be defined. The Psychological Impact of Covid19 across North America and an AI study of social media measuring overall mental health during Covid19 will be presented. Leading researchers in Grief and Berearvement, Lee and Neimeyer (2020) have conducted a study on Pandemic Grief and Assessing Risk. The Lee and Neimeyer (2020) Pandemic Grief Scale used to assess risk will be discussed for screening use in Palliative and Hospice Care.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Navigating Palliative Care in Indigenous Communities

Presenter(s):

Cara Basil, Masters Student, University of British Columbia Okanagan

Combatting the significant health inequities Indigenous Peoples face requires developing meaningful partnerships with Indigenous communities to resolve barriers and challenges such as those found in Indigenous palliative care. This presentation will ground a discussion of the issues Indigenous Peoples face specific to palliative care and a suggested path forward.

 

Language of Presentation: English

Please note, sessions will be presented in the language noted and will not be translated.

Poster Presentations

Grief’s Walking Stick – Bringing Grief back to Life

Presenter(s):

Stephen Garrett, Reverend, Just Alive Consulting

Grief has long been denied and pushed into the closet here in North America. This workshop will provide insight into the impacts of this approach and lay the ground work for welcoming grief back to family and community life. This workshop is particularly important given the wave of death coming towards us in the form the the baby boomer generation that will result in a significant increase in the number of deaths that will have to be homebased.

The Unmet Needs of Cancer Patients from Eastern India: An Ethnographic Study

Presenter(s):

Mehboobun Milky, The Unmet Needs of Cancer Patients from Eastern India: An Ethnographic Study, National Institute of Science Education and Research, HBNI, Bhubaneswar, India

This ethnographic study was undertaken to explore the experience of the unmet needs of cancer patients in the eastern India. Findings from this study offer an initial understanding of unmet needs of cancer patients.  This study will be beneficial for health care professionals in identifying and addressing their situation.

Volunteer Public Writers for End-of-Life Patients

Presenter(s):

Suzanne Le Blanc, Author, Volunteer Public Writer, Maison Mathieu-Froment-Savoie

Volunteer Public Writer Service for End-of-Life Patients: a high-quality service to help individuals express their feelings to their loved ones, tell the story of their life, and pass on their wisdom while there is still time.

Transitioning from Levels of Care to Goals of Care

Presenter(s):

Kenneth Hook, Dr., STAR Family Health Team

Conversations with patients about Goals of Care are part of Person Centred Decision Making. This poster will highlight a conversation guide which we developed to assist the staff of any long term care home to have a conversation about Goals of Care with residents and their families.  Included with this tool is a brochure we developed to explain CPR and a separate form for consent (or not) for CPR, based on the Goals of Care discussion.

Gaps in Hospice Palliative Care Research: Results from a Scoping Review of the North American Literature

Presenter(s):

Christopher Klinger, PhD, University of Toronto, National Initiative for the Care of the Elderly (NICE), Pallium Canada, and Quality End-of-Life Care Coalition of Canada (QELCCC)

Rebecca Antonacci, MEd, University of Toronto and National Initiative for the Care of the Elderly (NICE)

The Quality End-of-Life Care Coalition of Canada (QELCCC) is a stakeholder organization working to ensure that the end of life is framed in dignity. With the goal of bridging evidence to practice and policy, a scoping review of gaps in hospice palliative care research was conducted to ensure evidence-based decision making.

‘The Road Ahead’: Interventions to Support Informal Caregivers in Hospice Palliative Care

Presenter(s):

Christopher Klinger, PhD, University of Toronto, Pallium Canada, National Initiative for the Care of the Elderly, and Quality End-of-Life Care Coalition of Canada

Andrew Wan, MHSc, University of Toronto

Informal caregivers (ICs) often face physical, psycho-social, emotional and/or financial challenges when providing care at the end of life. This scoping review highlights the availability and efficacy of interventions and findings can be used to enhance policy and practice to better support ICs in Canada.

Exploring Death Literacy in Northwestern Ontario

Presenter(s):

Emily Payne, MSW student, Lakehead University

Kathy Kortes-Miller, Associate Professor, Lakehead University

The purpose of this research project is to learn more about the death literacy rates in Northwest Ontario with the goal of working towards increasing the death literacy rates of communities in our region.

The Death Literacy Index (DLI) was developed in Australia by the Caring at End of Life research team at Western Sydney University led by Dr. Debbie Horsfall.  The index provides a means to measure and research knowledge in 4 areas:

Practical Knowledge

Experiential Knowledge

Factual Knowledge

Community Knowledge

This poster will present findings from the DLI survey that was collected between January 2021 and May 2021

A road map to the future: Palliative and End-of-Life Care Alberta Provincial Framework Addendum

Presenter(s):

Michelle Peterson Fraser, Provincial Director Palliative and End-of-Life Care, Seniors Health & Continuing Care AHS, Alberta Health Services

Emma Buzath, Lead, Provincial Palliative & End-of-Life Care, Seniors Health & Continuing Care, Alberta Health Services, Alberta Health Services

Alberta is considered a leader in integrated innovative PEOLC programs and services. Recently an addendum to the 2014 PEOLC Alberta Provincial Framework was published to refresh, refocus, and reframe the work to be done ahead. This presentation will discuss the addendum and describe how it will map the road ahead.

Creating a webinar and using patient stories to enhance an ACP presentation

Presenter(s):

Kenneth Hook, Dr., STAR Family Health Team

Teresa Baressi, Primary Health Team Coordinator, STAR Family Health Team

This poster will illustrate how we used patient stories to enhance a presentation about Advance Care Planning.  We subsequently created a webinar to allow access to our presentation during the pandemic.  A survey showed attendees found the patient stories valuable and motivated them to start their own Advance Care Planning.

Toward 2023 Update on Canada’s Action Plan on Palliative Care

Presenter(s):

Elan Graves, Senior Policy Analyst, Health Canada

This poster presentation summarizes Canada’s Action Plan on Palliative Care and updates progress.  It provides an opportunity to continue  conversations and collaborations that will  advance shared priorities in improving the experience of giving and receiving palliative care.

Transitioning Indigenous End of Life Guide Volunteers to Virtual Format

Presenter(s):

Nicole Wikjord, RN, MSN, Clinical Nurse Specialist Serious Illness and Palliative Care, First Nations Health Authority

Sue Bartnik, RN, Practice Consultant Serious Illness and Palliative Care, First Nations Health Authority

Jennifer Mallmes, Bgs, RCHW, Douglas College

The poster will describe how Indigenous End of Life Guides, (volunteers) are taught how to support people and families during their final journey to the spirit world.  Using both palliative care/ Western principles and Indigenous lenses, the volunteers are supporting rural and remote BC First Nations communities.

It will describe cultural supports to the volunteer participants, and how those were provided virtually.  Successes and challenges of virtual format, plus future plans will be explored.

My worst nightmare has come true: my child has cancer and will die

Presenter(s):

Gabrielle Fortin, Professor, Université Laval

This poster describes the transition from curative to palliative care of a child with advanced cancer and outlines the factors that influence the parents’ experience of the child’s care trajectory. Recommendations for improving the support offered to parents are proposed. The preliminary results of a needs assessment conducted with healthcare professionals in oncology and pediatric palliative care in Quebec City are also presented.

QELCCC Blueprint for Action 2020-2025: A Progress Report

Presenter(s):

Christopher Klinger, PhD, National Initiative for the Care of the Elderly, Pallium Canada, and Quality End-of-Life Care Coalition of Canada

Jeffrey Moat, CM, Pallium Canada and Quality End-of-Life Care Coalition of Canada

The Quality End-of-Life Care Coalition of Canada (QELCCC) is a stakeholder organization working to ensure that the end of life is framed in dignity. Its new policy document, the Blueprint for Action 2020-2025, was rolled out in 2020, highlighting priority areas in line with Health Canada’s Framework on Palliative Care.

A Mapping Review of Ontario-Based Hospice Palliative Care Research

Presenter(s):

Christine Gordon, Director, Centre for Excellence, Hospice Palliative Care Ontario

This poster describes the results of a mapping review that was conducted to map the theoretical and empirical research that has been undertaken in the field of hospice palliative care in Ontario and to provide an overview of the different topics of research within the field.

Palliative and end-of-life care meets the Quebec population: protocol for a collaborative scientific popularization project

Presenter(s):

Martin Roberge, PhD Student, Université Laval

Alexandra Guité-Verret, PhD Student, Université du Québec à Montréal

In order to raise awareness and increase knowledge of palliative and end-of-life care among the Quebec population, a popularized scientific short film will be developed based on a needs’ study. The evaluation of knowledge transfer will determine the effectiveness of this method based on art and narration.

Hospice Palliative Care Research Funding in Canada: An Environmental Scan

Presenter(s):

Christopher Klinger, PhD, National Initiative for the Care of the Elderly, Pallium Canada, and Quality End-of-Life Care Coalition of Canada

Mehrnoush Mirhosseini, MD, College of Family Physicians of Canada, University of Alberta, Alberta Health Services, and Quality End-of-Life Care Coalition of Canada

Research and program evaluation are set to provide the field of hospice palliative care with an evidence base. This poster presentation will highlight the importance for continued research funding, with feasibility/proof of concept studies (without matching funds) to increase competitiveness for larger grants.

Pamela Simpson, BScPhm, RPh

Presenter(s):

Pamela Simpson, Pharmacist / Manager, Robinson’s Pharmasave

Palliative Care Symptom Management through the Lens of Community Pharmacy.

 

Working in partnership with community care programs, from symptom relief kits in the homes to medication management in the hospice.  I will be sharing tools that help with the prescribing, delivery, safety and accountability of all medications.

The Legacy Song Project

Presenter(s):

Sarah McInnis, Music Therapist, Blue Cedar Music Therapy

Personalized, biographical-based songs are written for people who are at the end of their life, and for those who have lost loved ones. Clients participate in a 1-hour interview (online or in-person) and receive their song within a 2-week period.

Expanding Hospice Palliative Care in Canada: an advocacy and awareness Initiative of the Canadian Cancer Society (CCS) and partners

Presenter(s):

Daniel Nowoselski, senior advocacy coordinator, Canadian Cancer Society

Sharon Baxter, Consultant, Sharon Baxter Consulting

The poster will describe this three-year initiative by CCS.  The initiative sets out to achieve the goals of improving care, access and quality of hospice palliative care listed below:

Quality hospice palliative care leads to better outcomes for people living with cancer and their families and has the potential to reduce healthcare costs for all levels of government. Hospice palliative care is an important component of the continuum of care and a person with cancer’s journey. The following calls to action are divided into objectives with specific priority areas of focus.

Improve access and quality of palliative care for all Canadians

  • Data: Improve data collection to better measure and report on palliative care and end-of-life care in Canada
  • Education and training: Provide all health care providers, including allied health care providers, appropriate education and training on the basic principles and practices of palliative care to ensure people with cancer receive the highest quality of care in the setting of their choice
  • Research: Invest in palliative and end-of-life research to improve patient outcomes
  • Bilateral funding agreements: Include palliative care in the upcoming re-signing of bilateral funding agreements between the federal/provincial/territorial governments
  • Access: Improve awareness of benefits of earlier access to palliative care

These goals can only be achieved with partnership and this initiative plans to work with key leadership organizations including the Quality End of Care Coalition of Canada (QELCCC).  The initiatives aim to engage others as champions including patients, families, caregivers, health care providers and others.

Using Interactive Graphic Design to Move Advance Care Planning Further Upstream

Presenter(s):

Lauren Thomas, Advance Care Planning, Nurse Clinician, Fraser Health Authority

Cari Borenko, Advance Care Planning, Lead, Fraser Health Authority

Andrew Saunderson, Advance Care Planning, Social Worker, Fraser Health Authority

Many health care institutions and ACP clinicians are challenged to teach and depict visually the complexities of the ACP process for both health care providers and the public. Fraser Health Authority and its partners across BC co-created an interactive illustration to support consistent understanding of ACP where and when various tools can be utilized within that process.

IMPACT: Early Lessons from the Toronto Perinatal Palliative Care Pilot

Presenter(s):

Sarah Lord, Dr., Hospital for Sick Children

Design and pilot data for a novel and collaborative perinatal palliative care program in Toronto, ON.

Knowledge Translation of the Alberta Palliative Care Competencies

Presenter(s):

Jingjie Xiao, Research Coordinator, Covenant Health Palliative Institute

The Covenant Health Palliative Institute has developed 15 Alberta based palliative care competency profiles, representing 24 HCP groups. The purpose of this poster is to present the key knowledge translation processes, activities, and tools used to promote the uptake and integration of palliative care competencies in Alberta.

Availability and Impact of Point of Care Ultrasound (POCUS) in North America – ‘The Road Ahead’ from a Scoping Review of the Literature

Presenter(s):

Christopher Klinger, PhD, McMaster University, University of Toronto, National Initiative for the Care of the Elderly, and Pallium Canada

Rachel Creighton, MSc(c), McMaster University and Pallium Canada

Hospice palliative care has evolved as an essential component of care for patients with life-limiting illnesses. This scoping review of the North American literature highlights the current and potential impact of point of care/portable ultrasound (POCUS) on hospice palliative care practice, and ‘the road ahead’.

Quantitative Analysis of Attitudes and Behaviours toward Advance Care Planning: Results from a 2021 Pan-Canadian Survey

Presenter(s):

Karine Diedrich, Director, Advance Care Planning in Canada, Advance Care Planning (ACP) in Canada

Many Canadians think Advance Care Planning (ACP) is important, but are they taking action to engage in the ACP process?  Results from a 2021 national poll around Canadians’ attitudes towards ACP provides some interesting findings.

“When there is no treatment anymore, why should I continue to suffer?”: Motivations of individuals who have requested medical aid in dying

Presenter(s):

Deborah Ummel, Professor, Université de Sherbrooke

Semi-structured interviews conducted with 13 participants have been analyzed using content analysis in order to describe experiences and motivations expressed by individuals who requested MAiD. Based on a deeper understanding of motivations to request MAiD, we suggest sensitive clinical interventions regarding patients at the end-of-life and their family members.

Poster

Legal and Ethical Deliberations in Children’s Healthcare: Identifying Ethical Problems or Scoping Moral Terrain?

Presenter(s):

Zoe Ritchie, Graduate Student & Research Fellow, Health and Rehabilitation Sciences, Faculty of Health Science, Western University

This presentation draws on analysis of legal and ethical deliberations involving healthcare and minors in Canada to critique simplified ‘solve for x’ approaches to ethical deliberations involving children. We advocate adoption of an expanded ethical framework that includes a broader scoping of ethical tensions and accounts for children’s views.

End-of-Life Care in the Neonatal Intensive Care in Lebanon: A Study of Parents’ Experiences

Presenter(s):

Ingrid Boutros, Mme, Université Laval

The admission of an infant at the neonatal intensive care unit for end-of-life care is emotionally, financially, and socially difficult for parents. To properly identify this experience, a literature review of 39 articles was carried out and four main themes was identified: 1) the various emotions experienced, 2) the parental role, 3) the recognition of baby’s life existence and 4) the information exchange and the decision making. To know if these themes look like the Lebanese parent’s experience of end-of-life in the neonatal intensive care, a descriptive qualitative study was carried out.

Grief Triggers  – Gaining Evidence to Facilitate Grief Recovery

Presenter(s):

Donna M Wilson, Dr, and Professor, University of Alberta

The findings of a study will be presented, with the intention to raise discussion about grief triggers as a major but underrecognized factor for grief.

Challenging Issues Panels

The CHPCA 2021 Conference will feature Challenging Issues Panels:

  • Marginalized Populations
  • Pediatrics
  • Compassionate Communities
  • MAiD
  • Grief and Bereavement
  • Advance Care Planning

More Details Coming Soon