Children’s Hospice Palliative Care Resource Repository 

What is Palliative Care?
Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.

Talking to Kids About Serious Illness 
Learn how to talk to your child about serious illness and how to answer some of the common questions and concerns they may have.

What is Pediatric Palliative Care
An in-depth definition of pediatric palliative care.

What is Children’s Palliative Care? 
The working definition of children’s palliative care as defined by the International Children’s Palliative Care Network.

Little Stars project 
Little Stars is a series of videos that tells life-affirming stories of young people around the world living with life-limiting illnesses. Against the odds, these children and young adults are making the most of every moment thanks to the support of their loved ones, working in harmony with passionate ‘pain and palliative care’ teams.

Annual campaign to raise awareness of the importance of Pediatric hospice palliative care.

CaringTogether.life 
A free platform, developed by families and pediatric healthcare providers, designed to educate, support, and empower parents caring for a seriously ill child and those who are experiencing pregnancy or infant loss.

Me and My Illness 
An activity book developed for kids aged 6-12 years living with a life-limiting illness, to help them think about and respond to their thoughts, feelings and questions.

KidsGrief.ca 
A resource that can help parents support their children when someone in their life is dying or has died. It equips parents with the words and confidence needed to help children grieve losses in healthy ways.

My Life, Their Illness
An activity book to help kids think about how someone’s illness is affecting their life.

Sibling Bereavement Video Series 
Six short documentary videos for two age groups of children/youth to watch and listen to when they were feeling alone in their grief after a death.

Caregiver Support Education 
Online modules on a variety of topics to assist caregivers in finding the support they need, exactly when they need it. Includes modules in English and French, as well as modules tailored for First Nations caregivers.

How Palliative Care Helps
Learn more about palliative care, what it is, and how it helps.

Core Concepts Definitions 
As you navigate the medical “system” and your family’s wishes, goals and values, you will likely come across some or all of these concepts: Anticipatory Grief, Baseline, Palliative Care, Shared Decision Making, and Advance Care Planning. Understanding them will help you be the best possible advocate for your child.

Guides 
Resources on a variety of topics, professionally reviewed by medical providers, are here as a learning source for you—and to share with others helping you care for your child.

Family Resources 
Family resources created to support anyone who is caring for, or has cared for, a child with a life-limiting or life-threatening condition.

Resource Repository for Professionals on Pediatric Palliative Care 
Compiled in 2018, this comprehensive resource repository was developed in partnership with pediatric palliative care professionals.

The Learning Hub
Improving quality, compassionate care education resources.

How to Identify a Child/Youth with a Serious Illness or Palliative Care Needs [PDF Version]

Supporting and communicating with families experiencing a perinatal loss 
Principal authors: Leonora Hendson, Dawn Davies

Pediatric Hospice Palliative Care Guiding Principles and Norms of Practice [PDF Version]

Standards of Practice for Pediatric Palliative Care [PDF Version]

End of life care for infants, children and young people with life-limiting conditions: planning and management
Published December 2016

Leap Courses
Learning essential approaches to palliative care.

Pediatric Palliative Care Approach to Pain & Symptom Management [PDF Version]

Basic Symptom Control in Pediatric Palliative Care
May 2022 edition with January 2024 note.

Care Pathways
Focused on putting children and families at the centre of the process of planning care and support.

Standards Framework [PDF Version]

Guide to Children’s Palliative Care [PDF Version]

Core Care pathway [PDF Version]

EPEC: Education in Palliative and End-of-Life Care
Educational resources

Pain Management, Research and Education Centre
Leading international pediatric centre specializing in pain prevention and treatment.

Certification Nursing Practice Specialties
Interprofessional educational opportunities.