Children’s Hospice Palliative Care Resource Repository
This resource repository touches on topics like what pediatric palliative care entails, anticipatory grief, and supporting siblings of children with a life-threatening illness, among many others.
For Everyone
About Kids Health
What is Palliative Care?
Palliative care includes reducing the physical, psychological, social and spiritual suffering that is associated with serious illness. Learn about the role palliative care providers can have in your child’s care.
Talking to Kids About Serious Illness
Learn how to talk to your child about serious illness and how to answer some of the common questions and concerns they may have.
Get Palliative Care
What is Pediatric Palliative Care
An in-depth definition of pediatric palliative care.
International Children’s Palliative Care Network
What is Children’s Palliative Care?
The working definition of children’s palliative care as defined by the International Children’s Palliative Care Network.
Canada’s Pediatric Palliative Care Alliance
Canada’s Pediatric Palliative Care Alliance is on a mission to transform pediatric palliative care in Canada.
For Families
Canadian Virtual Hospice
CaringTogether.life
A free platform, developed by families and pediatric healthcare providers, designed to educate, support, and empower parents caring for a seriously ill child and those who are experiencing pregnancy or infant loss.
Me and My Illness
An activity book developed for kids aged 6-12 years living with a life-limiting illness, to help them think about and respond to their thoughts, feelings and questions.
KidsGrief.ca
A resource that can help parents support their children when someone in their life is dying or has died. It equips parents with the words and confidence needed to help children grieve losses in healthy ways.
My Life, Their Illness
An activity book to help kids think about how someone’s illness is affecting their life.
Canada’s Pediatric Palliative Care Alliance
Family Members and Caregivers
Helpful information for people caring for a baby, child, or youth with a serious illness.
Find your closes pediatric palliative care team
Click your province or territory on the interactive map to explore teams and hospices in your region.
Roger Neilson Children’s Hospice
Sibling Bereavement Video Series
Six short documentary videos for two age groups of children/youth to watch and listen to when they were feeling alone in their grief after a death.
Hospice Palliative Care Ontario
Caregiver Support Education
Online modules on a variety of topics to assist caregivers in finding the support they need, exactly when they need it. Includes modules in English and French, as well as modules tailored for First Nations caregivers.
For Health Care Workers
Canadian Virtual Hospice
Resource Repository for Professionals on Pediatric Palliative Care
Compiled in 2018, this comprehensive resource repository was developed in partnership with pediatric palliative care professionals.
The Learning Hub
Improving quality, compassionate care education resources.
Canuck Place Children’s Hospice
How to Identify a Child/Youth with a Serious Illness or Palliative Care Needs [PDF Version]
Canadian Pediatric Society
Supporting and communicating with families experiencing a perinatal loss
Principal authors: Leonora Hendson, Dawn Davies
CHPCA
Pediatric Hospice Palliative Care Guiding Principles and Norms of Practice [PDF Version]
National Hospice and Palliative Care Organization USA
Standards of Practice for Pediatric Palliative Care [PDF Version]
NICE UK
End of life care for infants, children and young people with life-limiting conditions: planning and management
Published December 2016
Pallium
Leap Courses
Learning essential approaches to palliative care.
Canada’s Pediatric Palliative Care Alliance
Healthcare Professionals
Includes education opportunities, and a Resource Hub with hundreds of curated resources in the form of guides, checklists, clinical tools, guidelines, articles, education modules, and recorded sessions to support you in delivering pediatric palliative care.
Dana Farber Cancer Institute
Pediatric Palliative Care Approach to Pain & Symptom Management [PDF Version]
Together for Short Lives UK
Basic Symptom Control in Pediatric Palliative Care
May 2022 edition with January 2024 note.
Care Pathways
Focused on putting children and families at the centre of the process of planning care and support.
Standards Framework [PDF Version]
Guide to Children’s Palliative Care [PDF Version]
Core Care pathway [PDF Version]
Northwestern Medicine
EPEC: Education in Palliative and End-of-Life Care
Educational resources
Sick Kids
Pain Management, Research and Education Centre
Leading international pediatric centre specializing in pain prevention and treatment.
Canadian Nurses Association
Certification Nursing Practice Specialties
Interprofessional educational opportunities.
Pediatric Hospices in Canada
Rotary Flames House | Calgary, AB
Canuck Place Children’s Hospice | Vancouver, BC and David Lede House, Abbotsford, BC.
Emily’s House | Toronto, ON
Darling Home for Kids | Milton, ON
Roger Neilson Children’s Hospice | Ottawa, ON
Le Phare | Montreal, QC
Maison Lémerveil Suzanne Vachon | Québec, QC
Pediatric Palliative Care Programs in Canada
Alberta Children’s Hospital – Calgary, AB
Stollery Children’s Hospital – Edmonton, AB
BC Children’s Hospital – Vancouver, BC
Children’s Hospital, London Health Sciences Centre; London, ON
Children’s Hospital of Eastern Ontario; Ottawa, ON
IWK Health Centre – Halifax, NS
Royal University Hospital – Saskatoon, SK
Winnipeg Health Sciences Centre – Winnipeg, MB
Trillium Health Partners
Mississauga, ON
Gurjit Sangha RN BSc MN CHPCN(C)
Paediatric Palliative Care Facilitator – Women’s & Children’s Program
P: (905) 813-1100 ext. 6573
This repository was made possible by support from GSK Inc. and Purdue Pharma (Canada).
